Symptoms of my Chronic Fatigue Syndrome (CFS) diagnosis confirmed almost a month ago are still very unpredictable and challenging. My routine sleep hasn’t yet found its new balance and over the counter medication and natural remedies haven’t helped. After my body reacted badly to the prescription medications my doctors won’t take any chances with my every increasing allergies. My reactions have often been serious. One reaction required a 3am visit by paramedics who, after stabilizing me, transported me to the Emergency Department. It took almost two weeks to recovery from that reaction.

I believe that the number of restful sleep hours I do have most days are assisting with my overall recovery. For now, while irregular sleepless nights and unpredictable fatigue bursts persist, I’m thankful for all the restful sleeping hours I do have. There doesn’t seem to be any explanation for these hours on end of no sleep, only that it’s a part of CFS. As I’m reminded by my medical team and the Australian Chronic Fatigue Support Foundation, it is why CFS is recognised as a ‘chronic’ illness. Every victim, I mean patient, is different just as it is with Fibromyalgia (FM). For now an arthritis pain medication I’m not reacting to is helping me while my regular exercise daily walking routine is non-existent.

Norm and I often received ‘opinions’, ‘remedies’ and non-qualified ‘medical advice’. Most advice comes with no knowledge or experience of CFS, FM or even arthritis. We know this is just their way of wanting to help and see me well again but it can be frustrating.

Although the CFS symptoms can often be suffocating I have found my wakeful hours more productive this past week. I have enjoyed reading who-done-it mystery books as well as getting back into writing. Finding time to do a few of the things I once enjoyed, even if it’s at a much slower pace, has helped with my healing.

I can’t manage anything much in the garden beyond watering or picking a few vegetables. Norm, although not thrilled about it, has been willing to follow directions on small projects like removing end-of-season plants and trimming. When we first designed the garden, we did so with low maintenance, dodgy knees and backs in mind in the future and it’s paid off. We’re reminded often how grateful we are for our son’s skills and expertise. A once lifeless paddock of a backyard is now a well-drained, safe and functional area which has become my oasis. A garden filled with seasonally changes, life and even rest. The most rewarding part of the garden is to sit and enjoy the rewards it brings including the wildlife that visits daily.

Archived in: 🦋 Living with Chronic Ilness